Bill > A10260

This bill, known as the "Prader-Willi syndrome residential stabilization and best-practice support act," aims to improve services for individuals with Prader-Willi syndrome, a genetic disorder characterized by intellectual and developmental disabilities. It directs the Office of Mental Health to recognize Prader-Willi syndrome as a distinct, high-need group within this population and to develop and approve specialized residential models, including small, certified homes, within existing programs like individualized residential alternatives and supportive housing. The act also mandates the establishment of training and operational standards for these settings, focusing on crucial areas such as food security, medical monitoring, and behavioral support, all while utilizing existing funding, including Medicaid waiver services. Furthermore, the Department of Health will support medical necessity determinations for these specialized services, coordinate Medicaid-reimbursable components like nursing and nutritional management, and ensure these residential models meet public health and safety standards. Any necessary capital support for pilot homes or renovations will require approval from the division of the budget, with the overall goal of avoiding costs associated with crisis placements, institutionalization, and out-of-state services.

Health and Social Services

https://www.nysenate.gov/legislation/bills/2025/A10260