Bill > J01640

This resolution urges Governor Kathy Hochul to officially designate April 2026 as TAR Syndrome Awareness Month in New York State. TAR Syndrome, which stands for Thrombocytopenia-Absent Radius, is a rare congenital condition characterized by low platelet counts (thrombocytopenia), meaning the blood doesn't clot normally, leading to easy bruising and potentially life-threatening bleeding. It also involves the absence of the radius bones in both forearms, though thumbs are typically present. This syndrome can have lifelong implications for individuals, requiring ongoing medical monitoring and care for hematologic (blood-related), orthopedic (bone-related), and functional challenges. The resolution highlights the importance of raising awareness to educate the public, support affected individuals and their families, and promote research and improved treatments, emphasizing that access to appropriate medical services, along with other essential supports like housing and employment, is crucial for those living with TAR Syndrome to thrive.

Budget and Finance

https://www.nysenate.gov/legislation/bills/2025/J1640