Bill > SRes620

This resolution designates February 28, 2026, as "Rare Disease Day" to raise awareness about rare diseases, which are defined as affecting fewer than 200,000 individuals in the United States, and acknowledges that over 30 million Americans live with one of the more than 10,000 known rare diseases, many of which are serious and life-threatening, and that challenges exist in diagnosis, treatment, and financing life-altering therapies, despite advancements like the Orphan Drug Act and FDA programs such as the Accelerating Rare disease Cures Program, which have led to a significant number of novel drug approvals for rare conditions.

https://www.congress.gov/bill/119th-congress/senate-resolution/620/all-info