Bill > SRes57

This Resolution officially designates February 28, 2013, as "Rare Disease Day" to raise public awareness about rare diseases, which are defined as conditions affecting fewer than 200,000 people in the United States, and acknowledges that approximately 30 million Americans are affected by nearly 7,000 known rare diseases, many of which are serious, life-threatening, and lack effective treatments. The resolution highlights the challenges faced by individuals with rare diseases, such as difficulty in diagnosis and limited treatment options, while also recognizing the progress made due to legislation like the Orphan Drug Act and the efforts of organizations like the National Organization for Rare Disorders (NORD) in advocating for research and support. It further supports a national and global commitment to improving access to and developing new treatments, diagnostics, and cures for these conditions.