Bill > HR4221

This bill, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2014, aims to enhance and coordinate research on Tourette syndrome by amending the Public Health Service Act. It mandates the Secretary, through the Director of the National Institutes of Health (NIH), to expand, intensify, and coordinate NIH's programs and activities related to scientific and clinical research on Tourette syndrome. Key provisions include the development of a data collection system to gather information on Tourette syndrome's incidence, prevalence, impact, and related comorbid conditions, with data disaggregated by population and geographical region. The bill also calls for the establishment of between four and six Collaborative Research Centers for Tourette Syndrome across different U.S. regions, which will conduct basic and clinical research into the causes, diagnosis, prevention, and treatment of the syndrome, and may offer programs to raise awareness of research participation and provide referrals for health and other services to research subjects. Furthermore, the Secretary is directed to award competitive grants for research on the full spectrum of Tourette syndrome symptoms and the effectiveness of treatments for specific patient groups, and to designate a portion of NIH's available funds for Tourette syndrome-related programs and activities.