Bill > S2851

This bill, titled the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2014, aims to enhance and coordinate research on Tourette syndrome by amending the Public Health Service Act. It directs the Secretary of Health and Human Services, through the National Institutes of Health (NIH), to expand and intensify programs related to Tourette syndrome research. Key provisions include establishing a system to collect comprehensive data on Tourette syndrome, including its incidence, prevalence, impact, and related conditions, and disaggregating this data by population and geographic region. The bill also mandates the creation of between four and six Collaborative Research Centers for Tourette Syndrome across different U.S. regions, which will conduct basic and clinical research into the causes, diagnosis, prevention, and treatment of the syndrome, and may also involve patient outreach and referral services. Furthermore, it calls for competitive grants for research on the full spectrum of Tourette syndrome symptoms and the effectiveness of treatments for specific patient groups, and designates a portion of NIH funding for Tourette syndrome initiatives.