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US S849

US S849
Advancing Research for Neurological Diseases Act of 2016


summary

Introduced
03/24/2015
In Committee
02/09/2016
Crossed Over
Passed
Dead
01/03/2017

Introduced Session

114th Congress

Bill Summary

Advancing Research for Neurological Diseases Act of 2016 Amends the Public Health Service Act to require the Centers for Disease Control and Prevention to: (1) enhance and expand infrastructure and activities to track the epidemiology of neurological diseases, including multiple sclerosis and Parkinson's disease; and (2) incorporate information obtained through those activities into a National Neurological Diseases Surveillance System. Requires the Department of Health and Human Services (HHS) to ensure that the System facilitates further research on neurological diseases. Requires HHS to provide for the collection and storage of information on neurological diseases, including the incidence, prevalence, and other information, to the extent practicable. Requires HHS to: (1) make information and analysis in the System available to federal agencies and to the public, including researchers; and (2) ensure that privacy and security protections applicable to the System are at least as stringent as the protections under the Health Insurance Portability and Accountability Act.

AI Summary

This bill, the Advancing Research for Neurological Diseases Act of 2016, aims to improve the understanding and treatment of neurological diseases by requiring the Centers for Disease Control and Prevention (CDC) to enhance its infrastructure for tracking the epidemiology of these conditions, such as multiple sclerosis and Parkinson's disease. This collected information will be integrated into a new National Neurological Diseases Surveillance System. The Department of Health and Human Services (HHS) will be responsible for ensuring this system facilitates further research, collects and stores data on the incidence, prevalence, and other relevant aspects of neurological diseases, and makes this information accessible to federal agencies and the public, including researchers, while maintaining privacy and security protections at least as stringent as those under the Health Insurance Portability and Accountability Act (HIPAA).

Committee Categories

Health and Social Services

Sponsors (28)

Last Action

Placed on Senate Legislative Calendar under General Orders. Calendar No. 408. (on 04/04/2016)

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