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Bill > H67


MA H67

MA H67
Relative to familial dysautonomia


summary

Introduced
01/20/2015
In Committee
10/01/2015
Crossed Over
Passed
Dead
07/31/2016

Introduced Session

189th General Court

Bill Summary

For legislation to provide that persons diagnosed with familial dysautonomia disorder receive certain services from the Department of Developmental Services. Children, Families and Persons with Disabilities.

AI Summary

This bill ensures that individuals diagnosed with familial dysautonomia, a rare genetic disorder affecting the autonomic nervous system, will receive the same services and support from the Department of Developmental Services (DDS) as individuals with intellectual disabilities. The bill clarifies that a diagnosis of familial dysautonomia will be considered sufficient proof that a person qualifies as having an intellectual disability, as defined by state law and DDS regulations, for the purpose of accessing these services. Furthermore, the DDS, in collaboration with specific medical institutions, will develop the necessary rules and regulations to implement this act, and proposed regulations will be submitted to relevant legislative committees for review before they are finalized.

Committee Categories

Health and Social Services

Sponsors (26)

Last Action

Accompanied a study order, see H4635 (on 09/26/2016)

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