summary
Introduced
01/20/2015
01/20/2015
In Committee
10/01/2015
10/01/2015
Crossed Over
Passed
Dead
07/31/2016
07/31/2016
Introduced Session
189th General Court
Bill Summary
For legislation to provide that persons diagnosed with familial dysautonomia disorder receive certain services from the Department of Developmental Services. Children, Families and Persons with Disabilities.
AI Summary
This bill ensures that individuals diagnosed with familial dysautonomia, a rare genetic disorder affecting the autonomic nervous system, will receive the same services and support from the Department of Developmental Services (DDS) as individuals with intellectual disabilities. The bill clarifies that a diagnosis of familial dysautonomia will be considered sufficient proof that a person qualifies as having an intellectual disability, as defined by state law and DDS regulations, for the purpose of accessing these services. Furthermore, the DDS, in collaboration with specific medical institutions, will develop the necessary rules and regulations to implement this act, and proposed regulations will be submitted to relevant legislative committees for review before they are finalized.
Committee Categories
Health and Social Services
Sponsors (26)
Brian Ashe (D)*,
Leah Allen (R),
Jim Arciero (D),
Gailanne Cariddi (D),
Josh Cutler (D),
Sal DiDomenico (D),
Shawn Dooley (R),
Tricia Farley-Bouvier (D),
Sean Garballey (D),
Anne Gobi (D),
Paul Heroux (D),
Kay Khan (D),
Barbara L'Italien (D),
Jason Lewis (D),
Timothy Madden (D),
Joe McGonagle (D),
Paul McMurtry (D),
Mike Moore (D),
Thomas Petrolati (D),
Denise Provost (D),
Angelo Puppolo (D),
Jeff Roy (D),
Ellen Story (D),
Benjamin Swan (D),
John Velis (D),
Chris Walsh (D),
Last Action
Accompanied a study order, see H4635 (on 09/26/2016)
Official Document
bill text
bill summary
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bill summary
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bill summary
| Document Type | Source Location |
|---|---|
| State Bill Page | https://malegislature.gov/Bills/189/House/H67 |
| State Bill Page | https://malegislature.gov/Bills/189/H67 |
| Bill | https://malegislature.gov/Bills/189/H67.pdf |
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