Bill

Bill > H1167


MA H1167

Including Krabbe Disease in newborn screening


summary

Introduced
01/23/2017
In Committee
01/23/2017
Crossed Over
Passed
Dead
12/31/2018

Introduced Session

190th General Court

Bill Summary

For legislation to require the screening of newborns for Krabbe Disease and other lysomal storage disorders. Public Health.

AI Summary

This bill seeks to amend the General Laws of the state to require the screening of newborns for Krabbe Disease and other lysomal storage disorders, in addition to the existing requirement of screening for phenylketonuria. Krabbe Disease is a rare genetic disorder that affects the nervous system, and lysomal storage disorders are a group of inherited metabolic diseases. The bill aims to expand the state's newborn screening program to include these conditions, which can be detected early and treated if identified at birth.

Committee Categories

Health and Social Services

Sponsors (1)

Last Action

Accompanied a study order, see H4625 (on 06/18/2018)

bill text


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