MA H3714

Bill

To create a Massachusetts rare disease advisory council

Introduced
02/23/2017

In Committee
05/22/2017

Crossed Over

Passed

Dead
12/31/2018

Introduced Session

190th General Court

Bill Summary

For legislation to authorize the commissioner of the Department of Public Health to appoint a rare disease advisory council to coordinate statewide efforts for the study of the incidences of rare diseases within the Commonwealth. Public Health.

AI Summary

This bill would create a Massachusetts Rare Disease Advisory Council to coordinate statewide efforts for the study of the incidence of rare diseases within the Commonwealth and the status of the rare disease community. The council would consist of various healthcare professionals, state representatives, rare disease survivors, and other stakeholders. The council would be tasked with examining the incidence and causes of rare diseases, identifying effective prevention and treatment strategies, evaluating the current system of rare disease care, and developing a comprehensive rare disease plan for the Commonwealth. The bill also allows the council to request and receive confidential medical records and information, as well as apply for and receive funding to support its work.

Committee Categories

Health and Social Services

Sponsors (24)

Brian Ashe (D), Ruth Balser (D), Will Brownsberger (D), Thomas Calter (D), James Cantwell (D), Edward Coppinger (D), Josh Cutler (D), Marjorie Decker (D), Geoffrey Diehl (R), Shawn Dooley (R), Carole Fiola (D), Colleen Garry (D), Carlos González (D), Jonathan Hecht (D), Paul Heroux (D), Hannah Kane (R), Joe McKenna (R), Mike Moore (D), Matt Muratore (R), Shaunna O'Connell (R), Michael Rodrigues (D), Dave Rogers (D), Richard Ross (R), Alan Silvia (D),

Last Action

Accompanied a study order, see H4625 (on 06/18/2018)

Official Document

https://malegislature.gov/Bills/190/H3714

(13 Companion Bills)

Version:

Document Type	Source Location
State Bill Page	https://malegislature.gov/Bills/190/H3714
Bill	https://malegislature.gov/Bills/190/H3714.pdf

Bill	Bill Name	Last Action	Type
H1125	Instructing the Massachusetts Department of Public Health to study the feasibility of absorbing oversight of all “memory care” assisted living facilities and units in the Commonwealth	Accompanied a study order, see H4625	Similar To
H1131	Increasing nuclear power plant protections to a twenty mile radius	Accompanied a study order, see H4682	Similar To
H1133	To amend Section 5K(E) of Chapter 111	Accompanied a study order, see H4682	Similar To
H1135	Supporting school-based substance use prevention through evidenced-based positive social norms marketing	Accompanied a study order, see H4625	Similar To
H1171	To create a Massachusetts rare disease advisory council	Accompanied a study order, see H4625	Similar To
H1186	To promote patient care transparency and nurse advancement	Accompanied a study order, see H4681	Similar To
H1215	Promoting radon testing	No further action taken	Similar To
H132	Regulating body art	Accompanied a new draft, see S2413	Similar To
H2382	To prevent adolescent substance use	Accompanied a new draft, see H3768	Similar To
H2385	To protect patients approved by physicians and certified by the Department of Public Health to access medical marijuana	Accompanied a new draft, see H3768	Similar To
H2395	Relative to the report on substance abuse evaluations	Accompanied a study order, see H4624	Similar To
H4625	Public health	Discharged to the committee on House Rules	Replaced by
H621	Relative to accessible medical equipment	Accompanied a study order, see H4528	Similar To

Bill > H3714

MA H3714

summary

Introduced Session

Bill Summary

AI Summary

Committee Categories

Sponsors (24)

Last Action

Official Document

bill text

bill summary

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