Bill > S2465

This bill amends the Public Health Service Act to reauthorize a sickle cell disease prevention and treatment demonstration program and provide for sickle cell disease research, surveillance, prevention, and treatment. Specifically, it authorizes the Secretary to award grants to collect and maintain data on heritable blood disorders like sickle cell disease, conduct public health activities to improve health outcomes and access to quality care, and support state health departments and regional laboratories in testing and identifying these conditions. The bill also reauthorizes and modifies the existing sickle cell disease prevention and treatment demonstration program, extending it until 2023. Additionally, the bill expresses the Sense of the Senate that further research should be undertaken to expand the understanding of the causes of, and find cures for, heritable blood disorders, including sickle cell disease.

Health and Social Services

https://www.congress.gov/bill/115th-congress/senate-bill/2465/all-info