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Bill > H4865


MA H4865

Relative to certain genetically targeted drug coverage for Duchenne Muscular Dystrophy


summary

Introduced
07/31/2018
In Committee
08/06/2018
Crossed Over
07/31/2018
Passed
Dead
12/31/2018

Introduced Session

190th General Court

Bill Summary

Substituted by the House, on motion of Mr. Speliotis of Danvers, for a bill with the same title (House, No. 3644). July 31, 2018.

AI Summary

This bill requires certain health insurance plans in Massachusetts, including the Group Insurance Commission, MassHealth, and private insurers, to provide coverage for genetically targeted drugs for Duchenne muscular dystrophy. The drugs must be approved by the FDA, including through the accelerated approval process, and determined to be medically necessary by a physician with expertise in Duchenne muscular dystrophy. The bill also limits the out-of-pocket costs for these drugs and includes an exception if the drug price increases significantly more than the Consumer Price Index or if the manufacturer does not comply with state transparency requirements.

Committee Categories

Budget and Finance

Sponsors (1)

Last Action

Read; and referred to the committee on Senate Ways and Means (on 08/06/2018)

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