Bill > S3749

This bill, the Public Health Emergency Privacy Act, is designed to protect the privacy and security of emergency health data collected during the COVID-19 public health emergency. The key provisions include: - Requiring covered organizations that collect emergency health data to only collect, use, or disclose data that is necessary, proportionate, and limited for a good faith public health purpose. Covered organizations must also take reasonable measures to ensure data accuracy and prevent unlawful discrimination. - Prohibiting covered organizations from using emergency health data for commercial purposes like advertising or discrimination in employment, credit, housing, etc. - Requiring covered organizations to obtain affirmative express consent from individuals before collecting, using, or disclosing their emergency health data, with exceptions for certain security and legal purposes. - Mandating covered organizations to destroy or render non-linkable emergency health data within 60 days after the end of the COVID-19 public health emergency or collection, with some exceptions. - Empowering the Federal Trade Commission to enforce the Act and giving individuals a private right of action to sue for violations. - Prohibiting government entities and covered organizations from denying, restricting, or interfering with individuals' right to vote based on their emergency health data or medical status. The bill also requires regular public reporting by covered organizations and studies on the civil rights impacts of emergency health data collection.

Health and Social Services

https://www.congress.gov/bill/116th-congress/senate-bill/3749/all-info