summary
Introduced
05/14/2020
05/14/2020
In Committee
05/14/2020
05/14/2020
Crossed Over
Passed
Dead
12/31/2020
12/31/2020
Introduced Session
116th Congress
Bill Summary
A BILL To protect the privacy of health information during a national health emergency. 1
AI Summary
This bill, the Public Health Emergency Privacy Act, aims to protect the privacy and security of health information collected during a national public health emergency, such as the COVID-19 pandemic. The key provisions of the bill include:
Defining key terms like "affirmative express consent," "emergency health data," and "covered organization" to establish the scope of the legislation. Requiring covered organizations to only collect, use, or disclose emergency health data that is necessary and limited for a good faith public health purpose, and to take reasonable measures to ensure accuracy and prevent unlawful discrimination. Prohibiting covered organizations from using emergency health data for commercial purposes like advertising or discrimination in employment, housing, or public accommodations. Requiring covered organizations to obtain affirmative express consent from individuals before collecting, using, or disclosing their emergency health data, with provisions to allow individuals to revoke consent. Mandating covered organizations to publicly report on their collection, use, and disclosure of emergency health data, and to destroy or de-identify such data within 60 days after the end of the public health emergency. The bill also aims to protect the right to vote and requires reports on the civil rights impacts of emergency health data practices. Enforcement mechanisms include actions by the Federal Trade Commission and state attorneys general, as well as a private right of action for individuals.
Committee Categories
Business and Industry
Sponsors (38)
Anna Eshoo (D)*,
Nanette Barragán (D),
Don Beyer (D),
G. Butterfield (D),
Tony Cárdenas (D),
Ed Case (D),
Gil Cisneros (D),
Yvette Clarke (D),
Peter DeFazio (D),
Suzan DelBene (D),
Mark DeSaulnier (D),
Debbie Dingell (D),
Tulsi Gabbard (D),
Chuy García (D),
Raúl Grijalva (D),
Jahana Hayes (D),
Hank Johnson (D),
Joseph Kennedy (D),
Ro Khanna (D),
Brenda Lawrence (D),
Barbara Lee (D),
Ted Lieu (D),
Stephen Lynch (D),
Carolyn Maloney (D),
Doris Matsui (D),
Jim McGovern (D),
Jerry McNerney (D),
Grace Meng (D),
Eleanor Holmes Norton (D),
Mark Pocan (D),
Katie Porter (D),
Jamie Raskin (D),
Bobby Rush (D),
Michael San Nicolas (D),
Mary Gay Scanlon (D),
Jan Schakowsky (D),
Darren Soto (D),
Peter Welch (D),
Last Action
Referred to the House Committee on Energy and Commerce. (on 05/14/2020)
Official Document
bill text
bill summary
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bill summary
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bill summary
| Document Type | Source Location |
|---|---|
| State Bill Page | https://www.congress.gov/bill/116th-congress/house-bill/6866/all-info |
| BillText | https://www.congress.gov/116/bills/hr6866/BILLS-116hr6866ih.pdf |
| Bill | https://www.congress.gov/116/bills/hr6866/BILLS-116hr6866ih.pdf.pdf |
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