Bill > S2339

This bill establishes a Statewide Parkinson's disease registry managed by the Department of Health, which is the state agency responsible for public health. The registry will collect data on the incidence and prevalence of Parkinson's disease, a chronic neurological disorder affecting movement due to a dopamine deficiency in the brain, and related conditions called Parkinsonisms. Health care providers will be required to report diagnosed or treated cases to the registry, though individuals can opt out of participation. The collected information will be confidential and used for research and public health purposes, with strict protocols to protect personal identifying information. The bill also creates an advisory committee to assist in the registry's development and administration, composed of medical professionals, researchers, and individuals with Parkinson's disease, and mandates annual reports on the registry's findings to be submitted to the Governor and Legislature.

Budget and Finance, Health and Social Services

https://www.njleg.state.nj.us/bill-search/2024/S2339