Bill > A3693

This bill establishes a Statewide Parkinson's disease registry managed by the Department of Health, which is defined as the state agency responsible for public health. The registry will collect data on the incidence and prevalence of Parkinson's disease, a chronic neurological disorder affecting movement, and related conditions known as Parkinsonisms. Health care providers will be required to report diagnosed cases to the registry, though individuals will have the right to opt out. The Department of Health will consult with an advisory committee, composed of medical professionals, researchers, and patients, to guide the registry's development and data collection. All collected information will be kept confidential and de-identified to protect patient privacy, but data can be shared with approved researchers and other state registries for study purposes. The department will also publish annual reports on Parkinson's disease statistics and maintain a public webpage about the registry.

Budget and Finance, Health and Social Services

https://www.njleg.state.nj.us/bill-search/2024/A3693