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Bill > S00814


NY S00814

NY S00814
Provides that organ donation registrations through an electronic health record product do not retain or store patients' donor status information and meet standards established by the commissioner; amends the effective date.


summary

Introduced
01/08/2025
In Committee
01/08/2025
Crossed Over
Passed
Dead

Introduced Session

2025-2026 General Assembly

Bill Summary

AN ACT to amend the public health law, in relation to organ donation registration through a patient-facing portal; and to amend a chapter of the laws of 2024 amending the public health law relating to allowing patients to register in the "donate life registry" through their electronic health records, as proposed in legislative bills numbers S. and A. 7079, in relation to the effectiveness thereof

AI Summary

This bill amends New York State public health law to modify how patients can register for organ, eye, and tissue donation through electronic health records (EHRs). The bill requires EHR vendors to include a patient-facing portal that allows direct registration in the New York State "Donate Life Registry" while ensuring patient privacy and confidentiality. Specifically, the bill mandates that EHR products cannot retain or store patients' donor status information and must meet standards established by the health commissioner, such as including a standardized enrollment question. The bill expands the existing methods for registering as an organ donor to explicitly include transactions through an individual's EHR patient portal, and adjusts the effective date of implementation to two years after the law is enacted. The goal is to make organ donation registration more accessible and streamlined while protecting patient data, with the integration of these EHR components required to be provided by vendors without additional cost. The bill allows donor registrations made through electronic health records to be immediately transmitted to the state's Donate Life Registry, even as the full implementation is phased in over two years.

Sponsors (2)

Last Action

Companion passed 2025-05-23 (on 05/23/2025)

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