Bill > A05572

This bill modifies New York state law to enhance organ donation registration through electronic health records (EHRs) with specific privacy and data protection provisions. The legislation requires electronic health record vendors to integrate a patient-facing portal that allows direct registration in the New York state "donate life registry" for organ, eye, and tissue donations. Importantly, the bill mandates that these EHR products do not retain or store patients' donor status information to protect patient confidentiality and prevent potential conflicts of interest. Electronic health record vendors must provide this integration without additional cost and meet standards established by the state commissioner, including a standardized enrollment question and required data elements. The bill also expands the methods of organ donation registration, adding the patient-facing portal of electronic health records to the existing list of registration channels. Additionally, the bill adjusts the effective date, stipulating that the changes will take effect two years after the law is passed, with an immediate provision allowing donor registrations made through electronic health records to be transmitted to the state registry. This legislation aims to make organ donation registration more accessible and user-friendly while maintaining strict privacy protections.

Health and Social Services

https://www.nysenate.gov/legislation/bills/2025/A5572