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Bill > S01894


NY S01894

NY S01894
Enacts Paige's law to provide education and awareness regarding brain arteriovenous malformation and brain aneurysms, as well as information on being a potential carrier of hereditary hemorrhagic telangiectasia, thoracic aortic aneurysms, Marfan syndrome and related disorders and genetic testing for such conditions and disorders.


summary

Introduced
01/14/2025
In Committee
01/07/2026
Crossed Over
Passed
Dead

Introduced Session

2025-2026 General Assembly

Bill Summary

AN ACT to amend the public health law, the education law and the executive law, in relation to enacting Paige's law

AI Summary

This bill, known as Paige's law, introduces several comprehensive health awareness and education provisions across multiple sectors. It requires healthcare practitioners to provide pregnant patients with information about hereditary conditions like hemorrhagic telangiectasia, thoracic aortic aneurysms, and Marfan syndrome, including potential genetic screening options. For educators, the bill mandates that teachers complete annual training on identifying and responding to brain arteriovenous malformations, brain aneurysms, and strokes, with documentation to be kept in their personnel files. Additionally, the bill requires schools to provide educational materials to parents of kindergarten students about these medical conditions and potential genetic testing. Law enforcement and emergency medical services personnel will also receive annual training on protocols for identifying and responding to brain-related medical emergencies. The training can be conducted by school nurses, online programs, or approved training organizations, and aims to improve awareness and response capabilities for these potentially life-threatening medical conditions. The bill will take effect 180 days after becoming law, allowing time for agencies to develop and implement the required training and informational materials.

Committee Categories

Health and Social Services

Sponsors (1)

Last Action

REFERRED TO HEALTH (on 01/07/2026)

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