Bill > SB1049

This bill establishes a comprehensive Parkinson's Disease Research Collection Database within the Hawaii Department of Health to improve understanding of the disease's incidence and prevalence. The database will collect voluntary patient data on Parkinson's disease and related conditions (called Parkinsonisms), with patients given the option to opt-out of data collection. Healthcare providers will be required to report Parkinson's disease diagnoses, though only basic incidence information will be collected for patients who choose not to participate fully. A nine-member advisory committee will be created to help develop and guide the database, including representatives such as neurologists, patient advocates, and researchers. The database will maintain strict confidentiality protections, ensuring that individual patient information cannot be subpoenaed or used in legal proceedings. By January 1, 2026, the Department of Health must create a public webpage for the database and begin submitting annual reports to the legislature detailing Parkinson's disease statistics, including incidents by county and demographic information. The bill's broader purpose is to improve understanding of Parkinson's disease, particularly its potential links to military service, and ultimately work towards improving the lives of those affected by this progressive neurological condition.

Health and Social Services

https://www.capitol.hawaii.gov/session/measure_indiv.aspx?billtype=SB&billnumber=1049&year=2026