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Bill > HF503


IA HF503

A bill for an act relating to consumer data protection, and including retroactive applicability provisions.


summary

Introduced
02/20/2025
In Committee
02/20/2025
Crossed Over
Passed
Dead

Introduced Session

91st General Assembly

Bill Summary

This bill relates to consumer data protection. Under Code section 715D.1, “child” is defined as any natural person younger than 13 years of age. Under the bill, “child” is defined as any natural person younger than 18 years of age. The bill expands the definition of “health record” to include, in addition to any record containing related health information, any record containing nonhealth information that is related to health information provided in confidence to a health care provider. The bill expands the definition of “sensitive data” to include health data. “Health data” is defined in the bill. Under the bill, except as it relates to health data, the Code chapter shall not apply to the state or any political subdivision of the state; financial institutions, affiliates of financial institutions, or data subject to Tit. V of the federal Gramm-Leach-Bliley Act of 1999, 15 U.S.C. §6801 et seq.; persons who are subject to and comply with regulations promulgated pursuant to Tit. II, subtit. F, of the federal Health Insurance Portability and Accountability Act of 1996, Pub. L. No. 104-191, and Tit. XIII, subtit. D, of the federal Health Information Technology for Economic and Clinical Health Act of 2009, 42 U.S.C. §17921 - 17954; nonprofit organizations; or institutions of higher education. The bill exempts information or data maintained by a public health authority, as defined by HIPAA, from the Code chapter provided the public health authority has received the consumer’s authorization, unless otherwise required by HIPAA. The bill exempts information used only for public health activities and purposes as authorized by HIPAA, provided that the information is de-identified, aggregated, and processed in batches of no less than 100 consumers from the Code chapter. Under the bill, a consumer shall have the right to request to be notified of, or to opt out of, profiling in furtherance of a decision that produces legal or similarly significant effects concerning a consumer. The bill defines “profiling” as any form of automated processing performed on personal data to evaluate, analyze, or predict specific factors related to the economic status, health, personal preferences, interests, reliability, behavior, location, or movements of an individual. Notification to the consumer shall be in plain language and include the type of data subject to profiling, any requirements for a person receiving the consumer’s data to delete or return the data, and the process for a consumer to file a complaint. “Decision that produces legal or similarly significant effects concerning a consumer” is defined in the bill. The bill applies retroactively to January 1, 2025.

AI Summary

This bill enhances consumer data protection by expanding several key definitions and rights. It broadens the definition of "child" from under 13 to under 18 years of age, and expands the definition of "health record" to include not just health information but also related confidential non-health information provided to a healthcare provider. The bill introduces new definitions for "health data" and "profiling," which refers to automated processing of personal data to evaluate or predict an individual's characteristics. Importantly, the bill gives consumers the right to be notified about or opt out of profiling that could significantly impact their legal or economic opportunities, such as access to financial services, housing, insurance, education, employment, or healthcare. While the law generally does not apply to certain entities like financial institutions, nonprofit organizations, and higher education institutions, it makes a specific exception for health data. The bill also provides exemptions for public health data under specific conditions, such as being de-identified, aggregated, and processed in batches of at least 100 consumers. Notably, the bill will apply retroactively to January 1, 2025, signaling a proactive approach to data protection and consumer privacy.

Committee Categories

Health and Social Services

Sponsors (1)

Last Action

Introduced, referred to Health and Human Services. H.J. 375. (on 02/20/2025)

bill text


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