Bill > S735

This bill amends the Public Health Service Act to reauthorize and expand a sickle cell disease prevention and treatment demonstration program. The legislation updates language to emphasize not just the treatment of sickle cell disease, but also the prevention and treatment of its complications. It modifies the existing program by expanding funding options, allowing for grants, contracts, and cooperative agreements with relevant organizations. Specifically, the bill increases the annual funding from $4,455,000 (previously allocated for fiscal years 2019-2023) to $8,205,000 for fiscal years through 2029. Additionally, the bill includes a Congressional sense statement encouraging further research to better understand the causes of and potential cures for heritable blood disorders, with a particular focus on sickle cell disease. The bill is formally titled the "Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2025," signaling a comprehensive approach to addressing this serious genetic condition that primarily affects African Americans.

Health and Social Services

https://www.congress.gov/bill/119th-congress/senate-bill/735/all-info