Bill
Bill > H3366
summary
Introduced
02/27/2025
02/27/2025
In Committee
10/30/2025
10/30/2025
Crossed Over
Passed
Dead
Introduced Session
194th General Court
Bill Summary
By Representative Kassner of Hamilton and Senator Tarr, a joint petition of Kristin E. Kassner, Bruce E. Tarr and others for the issuance of an annual proclamation by the Governor to designate April 5 as Okur-Chung Neurodevelopmental Syndrome awareness day. State Administration and Regulatory Oversight.
AI Summary
This bill aims to establish April 5 as an annual Okur-Chung Neurodevelopmental Syndrome (OCNDS) Awareness Day in Massachusetts. The legislation would require the Governor to issue a yearly proclamation recognizing this day, with the goal of raising public awareness about OCNDS, a rare genetic disorder caused by mutations in the CSNK2A1 gene located on chromosome 20. The disorder is characterized by developmental delays and variations in brain function, and the bill emphasizes that early therapeutic interventions can help manage the condition. By designating a specific day for awareness, the bill seeks to increase understanding and support for individuals and families affected by this rare genetic syndrome, potentially promoting earlier diagnosis and more effective treatment strategies.
Committee Categories
Government Affairs
Sponsors (2)
Last Action
Read second and ordered to a third reading (on 11/24/2025)
Official Document
bill text
bill summary
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bill summary
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bill summary
| Document Type | Source Location |
|---|---|
| State Bill Page | https://malegislature.gov/Bills/194/H3366 |
| BillText | https://malegislature.gov/Bills/194/H3366.pdf |
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