Bill > SJR39

This resolution seeks to declare May 2025 as Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders (EDS and HSD) Awareness Month, highlighting the challenges faced by individuals with these rare inherited connective tissue disorders. The resolution explains that EDS affects approximately 1 in 5,000 people and is characterized by overly flexible joints, hyperextensible skin, and fragile body tissues, while HSD causes similar symptoms like joint instability and chronic pain. These conditions can lead to numerous health complications, including fatigue, headaches, gastrointestinal problems, and cardiovascular irregularities, and currently have no cure, requiring comprehensive management across multiple medical specialties. The resolution emphasizes the limited access to knowledgeable healthcare professionals in Wisconsin and argues that increased awareness among medical professionals and the general public can significantly improve the lives of people living with EDS and HSD by potentially facilitating better diagnosis, treatment, and research.

https://docs.legis.wisconsin.gov/2025/proposals/reg/sen/joint_resolution/sjr39