Bill > SRes292

This resolution supports the designation of June 19, 2025, as World Sickle Cell Awareness Day and aims to increase public understanding of sickle cell disease (SCD), a genetic blood disorder primarily affecting African-Americans and individuals from certain global regions. The resolution highlights the critical need for research, early detection, and improved treatments for SCD, which affects approximately 100,000 individuals in the United States and millions worldwide. It calls for comprehensive actions including supporting equitable access to innovative treatments, encouraging newborn screenings, and creating global policy solutions to address the disease. The resolution specifically urges the formation of an interagency group including federal health departments to develop policies supporting SCD patients, acknowledges the limited existing treatments, and emphasizes the importance of addressing healthcare disparities. Additionally, it recognizes the significant health challenges faced by SCD patients, such as chronic complications including anemia, stroke, and organ failure, and notes that in resource-poor countries, up to 90 percent of children with SCD do not survive to adulthood. The resolution aims to raise awareness, promote research, and improve healthcare outcomes for individuals living with this complex genetic condition.

Government Affairs

https://www.congress.gov/bill/119th-congress/senate-resolution/292/all-info