Bill > HRes524

This resolution supports the designation of June 19, 2025, as World Sickle Cell Awareness Day and addresses multiple aspects of sickle cell disease (SCD), a genetic blood disorder that predominantly affects African-American and Hispanic populations. The resolution acknowledges the significant health challenges associated with SCD, including its high prevalence (approximately 100,000 individuals in the United States), potential complications like chronic pain, stroke, and organ failure, and the devastating global impact, particularly in resource-poor countries where up to 90% of children with SCD do not survive to adulthood. The resolution calls for comprehensive actions, including supporting equitable access to new treatments, encouraging newborn screenings, promoting public awareness, and urging the formation of an interagency group to develop policies that support innovative therapies and address systemic healthcare biases. Additionally, it highlights recent medical advancements, such as two FDA-approved genetic therapies in December 2023, and emphasizes the ongoing need for research, early detection, and developing more effective treatments to improve the lives of individuals living with this challenging genetic condition.

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https://www.congress.gov/bill/119th-congress/house-resolution/524/all-info