Bill > H4555

This bill establishes a comprehensive approach to improving sickle cell disease care in Massachusetts through multiple key provisions. It creates a Statewide Steering Committee on Sickle Cell Disease within the Department of Public Health, composed of diverse representatives including medical professionals, patients, parents, and experts in sickle cell disease. The committee will establish partnerships, develop educational materials, identify funding sources, and oversee the development of a statewide network of stakeholders focused on supporting individuals with sickle cell disease. The bill also establishes a sickle cell disease detection and education program to promote screening, especially among underserved populations, and provide counseling and referral services. Additionally, the legislation mandates the creation of a comprehensive registry to collect data on sickle cell disease and its variants, which will help researchers and policymakers understand trends in healthcare access and treatment. A critical component of the bill requires Medicaid managed care organizations to develop a quality strategy for sickle cell disease care, including improving identification of members, ensuring provider network capacity, implementing care coordination strategies, and providing specialized training for healthcare providers. The bill aims to address healthcare disparities, improve patient care, and support individuals and families affected by sickle cell disease through a multifaceted, collaborative approach.

Health and Social Services

Joint Committee on Financial Services (Joint)

https://malegislature.gov/Bills/194/H4555