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FL S1574

FL S1574
Newborn Screenings


summary

Introduced
01/09/2026
In Committee
01/16/2026
Crossed Over
Passed
Dead

Introduced Session

2026 Regular Session

Bill Summary

An act relating to newborn screenings; providing a short title; amending s. 383.14, F.S.; revising rulemaking procedures; requiring that newborns, beginning on a specified date, be screened for biliary atresia; requiring the Department of Health to consult with the Genetics and Newborn Screening Advisory Council before adopting certain rules; requiring the department, by a specified date, to implement a certain education campaign relating to biliary atresia; creating s. 395.3043, F.S.; requiring hospitals that provide birthing services to screen for biliary atresia in a specified manner; providing an effective date.

AI Summary

This bill, known as "Mattie's Law," revises procedures for newborn screenings in Florida. It mandates that beginning January 1, 2027, all newborns must be screened for biliary atresia, a serious liver condition, by testing their direct bilirubin levels using the blood specimen already collected for newborn screenings. The Department of Health is required to consult with the Genetics and Newborn Screening Advisory Council, a group that advises on newborn screening programs, before adopting rules related to screening methods, follow-up procedures, and adding new conditions to the screening program. Additionally, the Department of Health must implement a public awareness campaign about biliary atresia by October 1, 2026, to educate parents and healthcare providers on its symptoms, risks, and the importance of early diagnosis. Hospitals providing birthing services will be required to screen newborns for biliary atresia as specified in the law.

Committee Categories

Budget and Finance

Sponsors (2)

Last Action

Senate Fiscal Policy Hearing (12:00:00 3/2/2026 412 Knott Building) (on 03/02/2026)

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