summary
Introduced
01/09/2026
01/09/2026
In Committee
01/15/2026
01/15/2026
Crossed Over
Passed
Dead
03/13/2026
03/13/2026
Introduced Session
2026 Regular Session
Bill Summary
An act relating to newborn screenings; providing a short title; amending s. 383.14, F.S.; revising rulemaking procedures; requiring, beginning on a specified date, that newborns to be screened for biliary atresia; requiring the Department of Health to consult with the Genetics and Newborn Screening Advisory Council before adopting certain rules; requiring the department, by a specified date, to implement a certain education campaign relating to biliary atresia; providing an effective date.
AI Summary
This bill, known as "Mattie's Law," revises procedures for newborn screenings in Florida. It mandates that, starting January 1, 2027, all newborns must be screened for biliary atresia, a serious liver condition affecting infants. The Department of Health is now required to consult with the Genetics and Newborn Screening Advisory Council, a group that advises on genetic and newborn screening matters, before making rules about screening methods, follow-up care, and adding new conditions to the screening program. Additionally, by October 1, 2026, the Department of Health must launch a statewide education campaign to inform parents and healthcare providers about biliary atresia, its symptoms, and the importance of early detection and treatment. The bill also makes a technical change to the existing law regarding screening for Duchenne muscular dystrophy, which is subject to legislative funding.
Committee Categories
Health and Social Services
Sponsors (1)
Last Action
Died in Health Professions & Programs Subcommittee (on 03/13/2026)
Official Document
bill text
bill summary
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bill summary
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bill summary
| Document Type | Source Location |
|---|---|
| State Bill Page | https://www.flsenate.gov/Session/Bill/2026/1335 |
| BillText | https://www.flsenate.gov/Session/Bill/2026/1335/BillText/Filed/PDF |
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