Bill > S1554

This bill proposes to make certain information within public reports on experimental treatment outcomes and safety signals confidential and exempt from public records requirements, specifically amending Florida Statute 499.0295. The exemption would apply to health information and proprietary pricing details contained in these reports, which are published annually by the Department of Health. The bill includes a statement of public necessity, arguing that releasing this sensitive personal health data could harm patients with terminal or life-threatening rare diseases who are undergoing experimental treatments, as they have a strong expectation of privacy. The Legislature finds that the potential harm from disclosure outweighs any public benefit. The bill also has a contingent effective date, meaning it will only take effect if similar legislation is passed during the same legislative session.

https://www.flsenate.gov/Session/Bill/2026/1554