Bill
Bill > H1383
FL H1383
FL H1383Pub. Rec./Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases
summary
Introduced
01/09/2026
01/09/2026
In Committee
01/15/2026
01/15/2026
Crossed Over
Passed
Dead
Introduced Session
2026 Regular Session
Bill Summary
An act relating to public records; amending s. 499.0295, F.S.; providing an exemption from public records requirements certain information contained in a public report published by the Department of Health relating to experimental treatment outcomes and safety signals; providing a statement of public necessity; providing a contingent effective date.
AI Summary
This bill amends Florida Statute 499.0295 to make certain information in the Department of Health's annual report on experimental treatments for terminal conditions and life-threatening rare diseases confidential and exempt from public records requirements. Specifically, the health information and proprietary pricing details within these reports will be protected from public disclosure. The bill states this is a public necessity because releasing such sensitive personal health data could harm patients who are undergoing experimental treatments, as they have a strong expectation of privacy, and the potential harm from disclosure outweighs any public benefit. This exemption will take effect if similar legislation is passed in the same legislative session.
Committee Categories
Health and Social Services
Sponsors (1)
Last Action
Now in Health Professions & Programs Subcommittee (on 01/15/2026)
Official Document
bill text
bill summary
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bill summary
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bill summary
| Document Type | Source Location |
|---|---|
| State Bill Page | https://www.flsenate.gov/Session/Bill/2026/1383 |
| BillText | https://www.flsenate.gov/Session/Bill/2026/1383/BillText/Filed/PDF |
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