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Bill > H1383


FL H1383

FL H1383
Pub. Rec./Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases


summary

Introduced
01/09/2026
In Committee
01/15/2026
Crossed Over
Passed
Dead

Introduced Session

2026 Regular Session

Bill Summary

An act relating to public records; amending s. 499.0295, F.S.; providing an exemption from public records requirements certain information contained in a public report published by the Department of Health relating to experimental treatment outcomes and safety signals; providing a statement of public necessity; providing a contingent effective date.

AI Summary

This bill amends Florida Statute 499.0295 to make certain information in the Department of Health's annual report on experimental treatments for terminal conditions and life-threatening rare diseases confidential and exempt from public records requirements. Specifically, the health information and proprietary pricing details within these reports will be protected from public disclosure. The bill states this is a public necessity because releasing such sensitive personal health data could harm patients who are undergoing experimental treatments, as they have a strong expectation of privacy, and the potential harm from disclosure outweighs any public benefit. This exemption will take effect if similar legislation is passed in the same legislative session.

Committee Categories

Health and Social Services

Sponsors (1)

Last Action

Now in Health Professions & Programs Subcommittee (on 01/15/2026)

bill text


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