Bill > AJR92

Introduced Session

This resolution designates May of each year as "Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders Awareness Month." Ehlers-Danlos Syndrome (EDS) represents multiple genetic disorders involving mutations in connective tissue that are characterized by looseness, instability, and dislocation of the joints and fragile skin that easily bruises and scars. There is currently no treatment for EDS and no known cure. Treatment for EDS focuses on managing symptoms and preventing complications through approaches like physical therapy, to improve joint stability, pain management strategies, and avoiding high-risk activities, and EDS support groups also help connect those managing life with the disease to available treatment services. Hypermobility spectrum disorders (HSD) are connective tissue disorders that cause joint hypermobility, instability, injury, and pain. Problems such as fatigue, headaches, gastrointestinal problems, and autonomic dysfunction are often seen as part of HSD. Both EDS and HSD involve joint hypermobility, chronic pain, fatigue, and sometimes autonomic or gastrointestinal symptoms. Ongoing medical research and growing awareness offer hope for improved treatments and, ultimately, a cure for EDS and HSD. In New Jersey, the Robert Wood Johnson University Hospital offers specialized care for individuals seeking diagnosis or management of EDS and HSD. May is recognized as Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) Awareness Month nationally, dedicated to raising awareness and support for those affected by these conditions. Officially designating May as "Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Awareness Month" in New Jersey would help increase public understanding of these heritable connective tissue disorders and promote continued research aimed at improving diagnosis and treatment.

AI Summary

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Andrea Katz (D)*, 

Introduced, Referred to Assembly Health Committee (on 01/13/2026)

Official Document