Bill > SB990

This bill, known as the "West Virginia ALS Care Services Act," aims to provide crucial support for individuals living with Amyotrophic Lateral Sclerosis (ALS), a progressive neurodegenerative disease, and their caregivers in West Virginia. It establishes a program administered by the Department of Human Services, with funds distributed to the ALS Association, to offer financial assistance for various services. These services include care coordination and support to help patients and families navigate the complexities of the disease, access to essential equipment like assistive technology and durable medical equipment through loan programs, and support for multidisciplinary ALS clinics. These clinics are highlighted as a way to consolidate specialized care, improve patient outcomes, extend life expectancy, and reduce overall healthcare costs by minimizing hospitalizations and the need for costly institutionalization. The bill also specifically mentions a Ramp Reutilization Loan Program, designed to make homes more accessible and prevent injuries, thereby allowing individuals with ALS to remain in their homes longer and reducing the financial burden on families and state programs. The overarching purpose is to improve the quality of life for those with ALS, enable them to stay in their homes with family-based care, and ultimately reduce healthcare expenditures for the state.

Health and Social Services

http://www.wvlegislature.gov/Bill_Status/Bills_history.cfm?input=990&year=2026&sessiontype=RS&btype=bill