summary
Introduced
04/15/2015
04/15/2015
In Committee
02/18/2016
02/18/2016
Crossed Over
Passed
Dead
07/31/2016
07/31/2016
Introduced Session
189th General Court
Bill Summary
For legislation to create lysosomal storage disorder awareness month. State Administration and Regulatory Oversight.
AI Summary
This bill proposes to amend Chapter 6 of the General Laws by adding a new section that designates the month of July as Lysosomal Storage Disorders (LSSDs) Awareness Month. LSSDs are rare inherited diseases that can cause significant suffering and death in infants and young children, particularly affecting the peripheral nervous system, but can be less debilitating if detected early through newborn screening. The bill mandates that the governor annually issue a proclamation to observe this month, aiming to increase public awareness and understanding of these conditions.
Committee Categories
Government Affairs
Sponsors (1)
Last Action
Bill reported favorably by committee and referred to the committee on Senate Rules (on 02/18/2016)
Official Document
bill text
bill summary
Loading...
bill summary
Loading...
bill summary
| Document Type | Source Location |
|---|---|
| State Bill Page | https://malegislature.gov/Bills/189/S1640 |
| Bill | https://malegislature.gov/Bills/189/S1640.pdf |
Loading...