summary
Introduced
01/25/2021
01/25/2021
In Committee
02/02/2021
02/02/2021
Crossed Over
06/24/2021
06/24/2021
Passed
Dead
01/03/2023
01/03/2023
Introduced Session
117th Congress
Bill Summary
AN ACT To amend the Public Health Service Act to reauthorize cer- tain programs under part A of title XI of such Act relating to genetic diseases, and for other purposes.
AI Summary
This bill, the Newborn Screening Saves Lives Reauthorization Act of 2021, aims to reauthorize and enhance certain programs under the Public Health Service Act related to genetic diseases. The key provisions include:
1. Improving newborn and child screening and follow-up for heritable disorders by facilitating, enhancing, and improving educational programs on newborn screening, and requiring the use of guidelines and recommendations to enhance capacity and infrastructure.
2. Reauthorizing the Advisory Committee on Heritable Disorders in Newborns and Children, which will develop consumer-friendly materials on the uniform screening panel nomination process and technical assistance, and provide recommendations on the use of genetic testing.
3. Amending the Newborn Screening Saves Lives Reauthorization Act of 2014 to consider research on nonidentified newborn dried blood spots as secondary research with nonidentified biospecimens.
4. Directing the Secretary of Health and Human Services to seek an agreement with the National Academy of Medicine to conduct a comprehensive study on the modernization of newborn screening, including the review and recommendation processes, barriers, research, new technologies, and communication needs.
Committee Categories
Business and Industry, Health and Social Services
Sponsors (58)
Lucille Roybal-Allard (D)*,
Cindy Axne (D),
Don Bacon (R),
Nanette Barragán (D),
Gus Bilirakis (R),
Suzanne Bonamici (D),
Julia Brownley (D),
G. Butterfield (D),
Ken Calvert (R),
Salud Carbajal (D),
Sean Casten (D),
Kathy Castor (D),
Judy Chu (D),
Katherine Clark (D),
Yvette Clarke (D),
Steve Cohen (D),
Tom Cole (R),
James Comer (R),
Gerry Connolly (D),
Danny Davis (D),
Rodney Davis (R),
Diana DeGette (D),
Suzan DelBene (D),
Mark DeSaulnier (D),
Brian Fitzpatrick (R),
Ruben Gallego (D),
Raúl Grijalva (D),
Alcee Hastings (D),
Jahana Hayes (D),
Jaime Herrera Beutler (R),
Brian Higgins (D),
Jim Himes (D),
Sheila Jackson-Lee (D),
Christopher Jacobs (R),
Ro Khanna (D),
Raja Krishnamoorthi (D),
Rick Larsen (D),
Kathy Manning (D),
Gregory Meeks (D),
Blake Moore (R),
Grace Napolitano (D),
Joe Neguse (D),
Eleanor Holmes Norton (D),
Tom O'Halleran (D),
Jamie Raskin (D),
Deborah Ross (D),
Mike Simpson (R),
Albio Sires (D),
Adam Smith (D),
Chris Stewart (R),
Steve Stivers (R),
Eric Swalwell (D),
Lauren Underwood (D),
Jeff Van Drew (R),
Jennifer Wexton (D),
Susan Wild (D),
Nikema Williams (D),
John Yarmuth (D),
Last Action
Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (on 06/24/2021)
Official Document
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