Bill > S350

This bill, the Newborn Screening Saves Lives Reauthorization Act of 2021, aims to reauthorize and improve certain programs under the Public Health Service Act relating to genetic diseases. Key provisions include: - Enhancing efforts to facilitate, improve, and develop educational programs on newborn screening, follow-up, treatment, and long-term care management. - Amending the Advisory Committee on Heritable Disorders in Newborns and Children to adopt process improvements, develop consumer-friendly materials on the uniform screening panel nomination process, and provide guidance on the use of genetic testing. - Authorizing additional funding for newborn screening programs and activities, including $31 million per year from 2022 to 2026. - Classifying research on non-identified newborn dried blood spots as secondary research for federally funded public health studies. - Requiring a study by the National Academy of Medicine on modernizing the newborn screening system, including the uniform screening panel review process, barriers to state implementation, and technological and infrastructure needs.

Health and Social Services

https://www.congress.gov/bill/117th-congress/senate-bill/350/all-info