Bill > HR7268

This bill, the DeOndra Dixon INCLUDE Project Act of 2024, aims to amend the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research, training, and investigation related to Down syndrome. The key provisions of the bill include: establishing the "INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE (INCLUDE) Project" to conduct research on various aspects of Down syndrome, such as the biological mechanisms responsible for associated conditions, the identification of biomarkers, and improving the quality of life for individuals with Down syndrome and their families. The bill also requires the Secretary to coordinate the Down syndrome research activities across different institutes and centers of the National Institutes of Health (NIH) and to prioritize research that is not duplicative. Additionally, the bill authorizes $250 million per fiscal year from 2025 to 2030 for the INCLUDE Project, with the funds intended to supplement, not replace, the existing NIH funding for Down syndrome research.