Bill > S3981

This bill, the DeOndra Dixon INCLUDE Project Act of 2024, aims to amend the Public Health Service Act to authorize the Secretary of Health and Human Services to establish a program of research, training, and investigation related to Down syndrome. The key provisions of the bill include: (1) conducting high-risk, high-reward basic science studies on the effects of chromosome 21 on human development and health; (2) assembling and maintaining a large study population of individuals with Down syndrome; (3) expanding the number of clinical trials that include or are specifically designed for individuals with Down syndrome; (4) investigating the biological mechanisms responsible for various conditions associated with Down syndrome; and (5) improving the quality of life for individuals with Down syndrome and their families. The bill also requires coordination among the relevant institutes, centers, agencies, and offices of the National Institutes of Health to prioritize non-duplicative research on Down syndrome and co-occurring conditions.