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Bill > AB206

WI AB206

The procedure for adding federal newborn screening recommendations to the state-required newborn screenings, granting rule-making authority, and providing an exemption from emergency rule procedures. (FE)

summary

Introduced
04/23/2025
In Committee
04/23/2025
Crossed Over
Passed
Dead

Introduced Session

2025-2026 Regular Session

Bill Summary

In general, under current law, newborns must be tested for certain congenital and metabolic disorders as specified in rules promulgated by the Department of Health Services. The federal Department of Health and Human Services maintains a list of disorders for which it recommends testing in newborns, known as the federal Recommended Uniform Screening Panel (RUSP). Under this bill, DHS must evaluate each disorder that is included in the RUSP as of January 1, 2025, to determine whether newborns in this state should be tested for that disorder. This requirement does not apply to any disorder in the RUSP if, as of January 1, 2025, the disorder is already included in the list of disorders for which newborns must be tested in this state. In addition, the bill requires DHS to evaluate any disorder added to the RUSP after January 1, 2025, to determine whether newborns in this state should be tested for that newly added disorder. If DHS determines newborns should not be tested for the disorder, DHS must annually review medical literature and the department[s capacity and resources to test for the disorder in order to determine whether to reevaluate the inclusion of the disorder in newborn testing in this state. If, in any of these evaluations or reevaluations, DHS determines that a disorder in the RUSP should be added to the list of disorders for which newborns must be tested in this state, the bill requires DHS to promulgate rules to add that disorder. The requirements for evaluations, reviews, and reevaluations under the bill do not apply to a disorder in the RUSP if DHS is in the process of adding, by rule, the disorder to the list of disorders for which newborns must be tested in this state. However, if the rule-making procedure for that disorder does not result in promulgation of a rule, then DHS must consider the disorder under the review and reevaluation procedures under the bill. For further information see the state fiscal estimate, which will be printed as an appendix to this bill.

AI Summary

This bill establishes a comprehensive procedure for the Wisconsin Department of Health Services (DHS) to evaluate and potentially add new disorders to the state's required newborn screening panel based on recommendations from the federal Recommended Uniform Screening Panel (RUSP). Under the bill, DHS must evaluate any new disorders added to the RUSP after January 1, 2025, within 18 months to determine whether newborns in the state should be tested for those conditions. If DHS decides a disorder should be included, they must initiate rule-making to add it to the state's screening list. For disorders that are initially deemed unnecessary for testing, DHS is required to conduct annual reviews of medical literature and assess the department's capacity to test for the disorder, with the option to reevaluate its inclusion. The bill also provides DHS with expedited emergency rule-making authority, allowing them to quickly implement new screening requirements without the typical stringent emergency rule procedures. Additionally, the bill includes a provision for evaluating disorders already in the RUSP as of January 1, 2025, that are not currently part of Wisconsin's screening panel, requiring a similar evaluation and potential rule-making process. If a new disorder is approved for screening, DHS must ensure testing begins within 6 months of the rule's publication.

Committee Categories

Health and Social Services

Sponsors (18)

Last Action

Fiscal estimate received (on 06/27/2025)

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