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Bill > AB571

WI AB571

WI AB571
A statewide Parkinson’s disease registry. (FE)

summary

Introduced
10/24/2025
In Committee
10/24/2025
Crossed Over
Passed
Dead

Introduced Session

2025-2026 Regular Session

Bill Summary

This bill directs the Department of Population Health Sciences, or its successor, at the UW-Madison School of Medicine and Public Health to establish and maintain a Parkinson[s disease registry and to collect data on the incidence and prevalence of Parkinson[s disease and parkinsonisms in this state. The bill defines XparkinsonismY as a condition that is similar or related to Parkinson[s disease. In addition, under the bill, if a health care provider treats or diagnoses a patient with Parkinson[s disease or a parkinsonism, that health care provider or the health care facility that employs or contracts with the health care provider must report information about the patient[s Parkinson[s disease or parkinsonism to the Department of Population Health Sciences for purposes of the Parkinson[s disease registry. If a patient declines to participate in the Parkinson[s disease registry, the health care provider or health care facility must report only the incident of the patient[s Parkinson[s disease or parkinsonism. Under the bill, these requirements are considered to have been met if the health care provider includes the information in the affected patient[s electronic medical record and the entity that has provides the health care provider[s electronic medical record services relays the information to the UW population health sciences department. The bill directs the Department of Population Health Sciences to create a website for the Parkinson[s disease registry that includes annual reports on the incidence and prevalence of Parkinson[s disease in this state. The bill also authorizes UW-Madison to enter into agreements in order to furnish data from the Parkinson[s disease registry to another state[s Parkinson[s disease registry, a federal Parkinson[s disease control agency, a local health officer, or a researcher who proposes to conduct research on Parkinson[s disease, subject to certain confidentiality requirements. For further information see the state fiscal estimate, which will be printed as an appendix to this bill.

AI Summary

This bill establishes a comprehensive Parkinson's disease registry at the University of Wisconsin-Madison's Department of Population Health Sciences to systematically collect and track data about Parkinson's disease and related conditions (parkinsonisms) in the state. The registry will require healthcare providers and facilities to report patient information when diagnosing or treating Parkinson's disease or parkinsonisms, with patients given the opportunity to review registry information and opt out of full data collection if desired. Healthcare providers must offer patients the chance to review informational materials, ask questions, and decline participation, but will still be required to report the basic incident of the disease. The bill defines key terms such as "parkinsonism" as conditions causing movement abnormalities similar to Parkinson's disease, including specific neurodegenerative disorders like multiple system atrophy and dementia with Lewy bodies. The Department of Population Health Sciences will create a public website featuring annual reports on disease incidence and prevalence, and is authorized to share anonymized data with other state registries, federal agencies, local health officers, and researchers, subject to strict confidentiality requirements that protect patient privacy by using a coding system that removes identifying information. The registry aims to improve understanding of Parkinson's disease through systematic data collection while maintaining robust patient privacy protections.

Committee Categories

Health and Social Services

Sponsors (30)

Last Action

Senator Hesselbein added as a cosponsor (on 02/10/2026)
(1 Companion Bills)

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