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Bill > SB570


WI SB570

WI SB570
A statewide Parkinson’s disease registry. (FE)


summary

Introduced
10/24/2025
In Committee
10/24/2025
Crossed Over
Passed
Dead

Introduced Session

2025-2026 Regular Session

Bill Summary

This bill directs the Department of Population Health Sciences, or its successor, at the UW-Madison School of Medicine and Public Health to establish and maintain a Parkinson[s disease registry and to collect data on the incidence and prevalence of Parkinson[s disease and parkinsonisms in this state. The bill defines XparkinsonismY as a condition that is similar or related to Parkinson[s disease. In addition, under the bill, if a health care provider treats or diagnoses a patient with Parkinson[s disease or a parkinsonism, that health care provider or the health care facility that employs or contracts with the health care provider must report information about the patient[s Parkinson[s disease or parkinsonism to the Department of Population Health Sciences for purposes of the Parkinson[s disease registry. If a patient declines to participate in the Parkinson[s disease registry, the health care provider or health care facility must report only the incident of the patient[s Parkinson[s disease or parkinsonism. Under the bill, these requirements are considered to have been met if the health care provider includes the information in the affected patient[s electronic medical record and the entity that has provides the health care provider[s electronic medical record services relays the information to the UW population health sciences department. The bill directs the Department of Population Health Sciences to create a LRB-4957/1 JAM:skw 2025 - 2026 Legislature SENATE BILL 570 website for the Parkinson[s disease registry that includes annual reports on the incidence and prevalence of Parkinson[s disease in this state. The bill also authorizes UW-Madison to enter into agreements in order to furnish data from the Parkinson[s disease registry to another state[s Parkinson[s disease registry, a federal Parkinson[s disease control agency, a local health officer, or a researcher who proposes to conduct research on Parkinson[s disease, subject to certain confidentiality requirements. For further information see the state fiscal estimate, which will be printed as an appendix to this bill.

AI Summary

This bill establishes a statewide Parkinson's disease registry at the University of Wisconsin-Madison Department of Population Health Sciences. The registry will collect comprehensive data on Parkinson's disease and related conditions (called parkinsonisms), including patient diagnoses, treatments, health outcomes, and demographic information. Healthcare providers, including physicians, physician assistants, and nurse practitioners, will be required to report patient information to the registry, with an option for patients to decline participation. If a patient declines, only the basic incident of their Parkinson's disease or parkinsonism will be reported. The department will create a public website featuring annual reports on Parkinson's disease incidence and prevalence, with data presented in downloadable and dashboard formats. To protect patient privacy, the registry will use a coding system that removes identifying information, and the collected data will be confidential and not admissible in legal proceedings. The bill also allows the University of Wisconsin-Madison to share anonymized data with other state registries, federal agencies, local health officers, and researchers, subject to strict confidentiality requirements and institutional review board approval. The registry aims to improve understanding of Parkinson's disease and related conditions in Wisconsin by systematically collecting and analyzing patient data.

Committee Categories

Health and Social Services

Sponsors (30)

Last Action

Senator Hesselbein added as a coauthor (on 02/10/2026)

bill text


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