Bill > S1686

This bill proposes to make certain records and personal identifying information submitted to the Parkinson's Disease Registry confidential and exempt from public records requirements, meaning they would not be accessible to the general public under Florida law (specifically, section 119.07(1) of Florida Statutes and Article I, Section 24(a) of the State Constitution). This exemption applies to information about individuals diagnosed with or treated for Parkinson's disease. However, there are exceptions: information can be released with the individual's written consent, the department or the consortium managing the registry can contact individuals for epidemiological investigation and monitoring without further disclosure of confidential information, and the department can share data with other governmental agencies or entities for medical or scientific research as long as those entities also do not further disclose the confidential information. The bill also states that this exemption is subject to future legislative review and will automatically be repealed on October 2, 2031, unless the Legislature acts to extend it. The Legislature has declared this exemption a public necessity to protect patient privacy, comply with federal laws like HIPAA (Health Insurance Portability and Accountability Act of 1996), and ensure the effective operation of the Parkinson's Disease Registry for research and tracking purposes. The bill's effective date is contingent on the passage of similar legislation in the same legislative session.

Budget and Finance

Health Policy (Senate)

https://www.flsenate.gov/Session/Bill/2026/1686