Bill > H1445

This bill creates a new section in Florida Statutes to establish a public records exemption for patient information held in the Parkinson's disease registry, meaning this specific information will not be accessible to the public under current public records laws (like s. 119.07(1) and s. 24(a), Art. I of the State Constitution). This exemption is necessary to protect individuals' privacy, prevent harassment or solicitation, and ensure the registry functions effectively. However, this confidential information can still be shared with the Parkinson's Disease Research Board and with private entities contracted to manage the registry, provided these entities agree to strict conditions, including submitting research plans, maintaining confidentiality, destroying data after research, and refraining from contacting patients directly. This exemption is temporary and will be automatically repealed on October 2, 2031, unless the Legislature actively chooses to extend it.

Government Affairs, Health and Social Services

Health Professions & Programs Subcommittee (House)

https://www.flsenate.gov/Session/Bill/2026/1445