Bill > AR3

This resolution seeks to observe February 28, 2025, as Rare Disease Day in Wisconsin, highlighting the significant challenges faced by individuals with rare diseases. The resolution provides context about rare diseases, noting that there are nearly 10,000 conditions affecting fewer than 200,000 Americans, and collectively impacting approximately 25 to 30 million people nationwide. It emphasizes that while over 800 drugs have been approved for rare disease treatment by the FDA, many patients still lack approved treatments. The resolution points out the difficulties patients encounter, including delayed diagnoses, challenges finding medical experts, and limited access to treatments and services. It also recognizes that some rare disease communities struggle to fund research and raise public awareness. The National Organization for Rare Disorders (NORD) is organizing the nationwide observance, and the resolution acknowledges that nearly one in 10 Americans are affected by rare diseases, including residents of Wisconsin. By highlighting these issues, the resolution aims to draw attention to the experiences of those living with rare diseases and promote understanding and support for affected individuals and families.

https://docs.legis.wisconsin.gov/2025/proposals/reg/asm/resolution/ar3