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Bill > HJR1021

CO HJR1021

CO HJR1021
February 28 Rare Disease Day

summary

Introduced
02/19/2025
In Committee
02/28/2025
Crossed Over
02/28/2025
Passed
03/13/2025
Dead

Introduced Session

2025 Regular Session

Bill Summary

25-1021 CONCERNING THE DECLARATION OF FEBRUARY 28, 2025, AS RARE DISEASE DAY.

AI Summary

This resolution declares February 28, 2025, as Rare Disease Day in Colorado, highlighting the significant challenges faced by individuals with rare diseases. The resolution provides context about rare diseases, noting that one in ten people (over 500,000 Coloradans and 30 million Americans) live with a rare disease, with an estimated 15 million children affected nationwide. It emphasizes that there are over 10,000 rare diseases affecting fewer than 200,000 Americans, most of which are genetic, often lifelong, and many terminal. The resolution points out the significant medical and financial burdens, including direct medical costs three to five times higher than non-rare diseases and fewer than 5% of rare diseases having FDA-approved treatments. Using the zebra as a symbolic mascot, the resolution calls for solidarity, awareness, and support for those living with rare diseases. It formally resolves to: declare February 28, 2025, as Rare Disease Day; show support for individuals with rare diseases; recognize their challenges and humanity; and acknowledge the broader community of people living with these conditions.

Sponsors (87)

Lorena García (D)*,  Lindsay Gilchrist (D)*,  Cathy Kipp (D)*,  Faith Winter (D)*,  Judy Amabile (D),  Ryan Armagost (R),  Jennifer Bacon (D),  Mark Baisley (R),  Matt Ball (D),  Carlos Barron (R),  Shannon Bird (D),  Andrew Boesenecker (D),  Brandi Bradley (R),  Jeff Bridges (D),  Scott Bright (R),  Max Brooks (R),  Kyle Brown (D),  Jarvis Caldwell (R),  Sean Camacho (D),  John Carson (R),  Marc Catlin (R),  Chad Clifford (D),  James Coleman (D),  Lisa Cutter (D),  Jessie Danielson (D),  Lindsey Daugherty (D),  Ken Degraaf (R),  Monica Duran (D),  Regina English (D),  Cecelia Espenoza (D),  Tony Exum (D),  Lisa Feret (D),  Lisa Frizell (R),  Meg Froelich (D),  Lori Garcia Sander (R),  Julie Gonzales (D),  Ryan Gonzalez (R),  Eliza Hamrick (D),  Tony Hartsook (R),  Nick Hinrichsen (D),  Jamie Jackson (D),  Iman Jodeh (D),  Dusty Johnson (R),  Junie Joseph (D),  Rebecca Keltie (R),  Barbara Kirkmeyer (R),  Chris Kolker (D),  Sheila Lieder (D),  William Lindstedt (D),  Larry Liston (R),  Meghan Lukens (D),  Paul Lundeen (R),  Javier Mabrey (D),  Janice Marchman (D),  Matt Martinez (D),  Tisha Mauro (D),  Julie McCluskie (D),  Karen McCormick (D),  Dafna Michaelson Jenet (D),  Kyle Mullica (D),  Amy Paschal (D),  Byron Pelton (R),  Rod Pelton (R),  Jacqueline Phillips (D),  Rose Pugliese (R),  Janice Rich (R),  Chris Richardson (R),  Dylan Roberts (D),  Robert Rodriguez (D),  Manny Rutinel (D),  Gretchen Rydin (D),  Cleave Simpson (R),  Emily Sirota (D),  Lesley Smith (D),  Marc Snyder (D),  Matt Soper (R),  Rebekah Stewart (D),  Larry Suckla (R),  Tom Sullivan (D),  Rick Taggart (R),  Brianna Titone (D),  Alex Valdez (D),  Elizabeth Velasco (D),  Ron Weinberg (R),  Michael Weissman (D),  Ty Winter (R),  Dan Woog (R), 

Last Action

Signed by the President of the Senate (on 03/13/2025)

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